Five-year-old Ari Schultz, diagnosed with critical aortic stenosis and evolving hypoplastic left heart syndrome before he was even born, has been waiting for a new heart his whole life.
When his parents tell Ari he’s finally getting a new heart, the little guy goes through a wave of emotions.
Excitement, because he can soon go see a baseball game. (Ari likes the Red Sox.) Though there’s trepidation, too. Ari doesn’t want any more IV’s. Ari’s parents have documented Ari’s journal on the website Echo of Hope.
During the conversation with his parents, Ari desperately wanted to know one thing: “Are they going to find a good spot to put it?”
Well, I’m happy to announce the surgery was successful. They did in fact find a good spot to put the new heart. He’s currently in recovery, excited to soon attend a baseball game!
One last tidbit about Ari: He’s got great taste in music. According to his parents, there was one song Ari wanted to hear as they waited at Boston Children’s Hospital before his surgery: the live cut of The Grateful Dead’s “Scarlet Begonias” and “Fire on the Mountain.”